Couple ride for Henry
ALLY and Paula Sperring completed this year's Paris to Hayling charity ride Le Tour de Tours, to raise funds for The Gauchers Association.
Six-year-old Henry Jameson, who lives on Hayling and attends Mill Rythe Infant School, suffers with type one Gaucher disease.
It is a very rare genetically inherited enzyme deficiency. Symptoms can appear at any time from infancy to old age.
They include anaemia, fatigue, easy bruising and a tendency to bleed as well as problems caused by an enlarged spleen and liver with a protruding stomach.
They also suffer bone pain, demineralisation and fractures.
Henry is under the care of doctors at London's Great Ormond Street Hospital - as yet there is no cure.
His mum, Lucy however is now able to administer his fortnightly infusions of enzyme replacement therapy from home, enabling him to lead a normal life.
To date, Ally and Paula have raised 600 sponsorship from the ride, which proved very hard.
Ally, of Southleigh Grove, said: "When you ask people they have never heard of Gauchers Disease and seemed to think you were making it up."
If anyone would like to donate money to the charity they have a website at www.justgiving.com and to find out more about the disease go to www.gaucher.org.uk
Email to a friend
Print this page
Looking for...
Featured advertisers
Jobs
Search for a job
Motors
Search for a car
Property
Search for a house
Weather for Hayling
Saturday 11 February 2012
Today
Sunny
Temperature: -4 C to 3 C
Wind Speed: 8 mph
Wind direction: North east
Tomorrow
Cloudy
Temperature: 3 C to 4 C
Wind Speed: 12 mph
Wind direction: North
